Cancer
Genomic testing offers personalised treatment for patients with myeloid blood cancers
Ethics, Legal and Social Implications of Genomics
Ensuring the ethical delivery of genomic medicine for Queenslanders.
The use of genomics has the potential to transform healthcare, but new approaches to diagnosing and treating disease also brings potential ethical, legal and social issues.
Queensland Genomics Ethics, Legal and Social Implications Workstream worked towards developing a series of guidelines and policies to support a range of these matters including:
- community engagement
- consent
- research
- justice
- the clinical use of genomics
Project Deliverables
To ensure Queensland is equipped to apply medical genomics to everyday healthcare, a number of capability building projects were funded in Round 1.
Community Engagement
- Consult with key stakeholders
- Develop a consultation plan to engage Rural and Indigenous communities
- Consult with Clinical Demonstration Projects
Consent:
- Consult with stakeholders
- Develop recommendations for standardising the consent process
- Develop and deploy a Patient Survey
Genomic Research:
- Consult with Australian Genomics Health Alliance and Melbourne Genomics Health Alliance
- Consult with National Advisory Groups
- Consult with Queensland Genomics Community Advisory Group
- Conduct a literature and legislation review on biobanking (storage/access/use)
Justice:
- Review of access associated challenges for genomic testing in rural and indigenous communities
- Engage with indigenous and rural communities
Health Systems:
- Consult with Australian Genomics Health Alliance and Melbourne Genomics Health Alliance
- Review legal issues – genomic testing
- Review potential ramifications of genetic testing
Project Investigators
Project leaders engage with and draw upon the expertise of partners within universities, research institutes and hospital and health services around Queensland.
Dr Nic Waddell, QIMR Berghofer Medical Research Institute (Co-lead)
Professor Belinda Bennett, Queensland University of Technology (Co-lead)
Professor John Devereux, The University of Queensland (Co-lead)
Professor Karen Hussey, The University of Queensland (Co-lead)
Dr Fiona McDonald, Queensland University of Technology
Dr Caitlin Curtis, The University of Queensland
Dr Marie Mangelsdorf, The University of Queensland
Dr Miranda Vidgen, QIMR Berghofer Medical Research Institute
Professor David Whiteman, QIMR Berghofer Medical Research Institute
Dr Julie McGaughran, Genetic Health Queensland
Dr Sashika Naidoo, QIMR Berghofer Medical Research Institute
Greg Pratt, QIMR Berghofer Medical Research Institute
Professor Des Butler, Queensland University of Technology
Associate Professor Tina Cockburn, Queensland University of Technology
Dr Angela Daly, Queensland University of Technology
Dr Andrew McGee, Queensland University of Technology
Professor Matthew Rimmer, Queensland University of Technology
Dr Mal Smith, Queensland University of Technology
Dr Shih-Ning Then, Queensland University of Technology
Dr Jane Jacobs, Queensland University of Technology
Professor Matt Brown, Queensland University of Technology
Associate Professor David Morrison, The University of Queensland
Professor Xue Li, The University of Queensland
Professor Simon Bronitt, The University of Queensland
Professor Luke Connelly, The University of Queensland
Dr Kim Nichols, The University of Queensland
Dr Julian Lamont, The University of Queensland
Dr David Rowell, The University of Queensland
Associate Professor Andrew Crowden, The University of Queensland
Professor Julian Savulescu, University of Oxford
Associate Professor Ainsley Newson, The University of Sydney
Professor Margaret Otlowski, University of Tasmania
Professor Dianne Nicol, University of Tasmania
Professor Emma Kowal, Australian National University
Dr Nikola Stepanov, James Cook University
Round 1 – Capability-building projects
