Community Group Research Projects
The Queensland Genomics Community Group is a key part of the Alliance’s collaborative model.
The Queensland Genomics Community Group consists of representatives from across the genomic healthcare community.
The group brings together health consumers, clinicians, health researchers and health administrators to identify and deliver on community led projects and to build understanding between these diverse stakeholder groups.
The Queensland Genomics Community Advisory Group is currently working on the following research papers:
- Mapping the Patient Journey: Interviews with rare disease patients in Queensland and Victoria to determine the different ways genetic health services are accessed in different jurisdictions.
- Health Consumers Queensland Forum Survey and Analysis: Develop, deploy and analyse a survey of participants the Health Consumers Queensland Forum. The survey of health consumers asked participants to self-rate their health system knowledge versus their genomic medicine knowledge.
Project leaders engage with and draw upon the expertise of partners within universities, research institutes and hospital and health services around Queensland.
Dr Aideen McInerney Leo, The University of Queensland; Queensland Genomics Community Group
Dr Erin Evans, Health Consumers Queensland; Queensland Genomics Community Group
Dr Lindsay Fowles, Metro North Hospital and Health Service; Queensland Genomics Community Group
David Bunker, Executive Director, Brisbane Diamantina Health Partners
Katrina Cutler, Queensland Genomics; Queensland Genomics Community Group
Courtney Wallingford, Translational Research Institute