Aboriginal and Torres Strait Islander people to share the benefits of genomic medicine
To build genomics health literacy for people from culturally and linguistically diverse backgrounds, this project team have developed and delivered genomics education sessions to bilingual health workers and medical interpreters.
The Genomics Information Toolkit for Patients is designed to help people access genetic and genomic health services and testing in Queensland. The toolkit will include a collection of fact sheets which will be available to download in September 2020.
This community awareness building project partnered with Health Consumers Queensland (HCQ) on their annual Forum – to educate and engage with highly engaged health consumers. HCQ’s annual forum brings together 200-300 health consumers, community engagement practitioners and clinicians each year.
The Indigenous Genomics Health Literacy Project team launched a series of health literacy resources to support and engage Aboriginal and Torres Strait Islander peoples in accessing genomics and personalised medicine.
The genomics education materials, which include brochures and a video, are culturally appropriate and cover the topics of DNA, genes, genetic health, genetic testing and precision medicine.
The Queensland Genomics Community Advisory Group is currently working on the following research papers:
This community-led project will scope a Genomic Support Network for Queensland Patients that would:
The Queensland Genomics Community Advisory Group is a key part of the Alliance’s collaborative model. The group brings together representatives from across the medical genomics community including patients, clinicians, researchers and health administrators.